Export Publication

The publication can be exported in the following formats: APA (American Psychological Association) reference format, IEEE (Institute of Electrical and Electronics Engineers) reference format, BibTeX and RIS.

Export Reference (APA)
Riso, B. & Águas, C. (2022). Digital informed consent: Possibilities and challenges in biobanks for health research. Cadernos de Saúde Societal. 3, 53-62
Export Reference (IEEE)
B. A. Riso and C. Águas,  "Digital informed consent: Possibilities and challenges in biobanks for health research", in Cadernos de Saúde Societal, no. 3, pp. 53-62, 2022
Export BibTeX
@article{riso2022_1716224858553,
	author = "Riso, B. and Águas, C.",
	title = "Digital informed consent: Possibilities and challenges in biobanks for health research",
	journal = "Cadernos de Saúde Societal",
	year = "2022",
	volume = "",
	number = "3",
	pages = "53-62",
	url = "https://www.iscte-iul.pt/assets/files/2022/11/24/1669293875177_cadernos_Saude_Societal_03_2022_PT.pdf"
}
Export RIS
TY  - JOUR
TI  - Digital informed consent: Possibilities and challenges in biobanks for health research
T2  - Cadernos de Saúde Societal
IS  - 3
AU  - Riso, B.
AU  - Águas, C.
PY  - 2022
SP  - 53-62
SN  - 2184-9676
UR  - https://www.iscte-iul.pt/assets/files/2022/11/24/1669293875177_cadernos_Saude_Societal_03_2022_PT.pdf
AB  - Biobanks are key infrastructures in biomedical research, storing and providing biological samples, personal and clinical data. Informed con- sent is a central piece of the process, as a means to respect each parti- cipants’ dignity, integrity and to acknowledge their capacity to express autonomous decisions. Providing adequate information, while ensuring the voluntariness of their decision are essential to an effective consent. Requesting informed consent usually takes place in the context of heal- thcare, where paper forms are still widely preferred, when not manda- tory and when person to person relationships are crucial.
As biobanks are moving fast to implement automated protocols from biological samples processing to data collection, it is relevant to discuss the challenges posed by the digitalization of informed consent. To this end, such transition will be critically discussed using dynamic consent as a starting point to highlight the opportunities of digital tools, but also the relevance of healthcare context.
ER  -