Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality - Feeney, O.; Borry, P.; Felzmann, H.; Galvagni, L.; Haukkala, A.; Loi, M.; Nordal, S.; Rakic, V.; Riso, B.; Sterckx, S.; Vears, D. (Journal of Community Genetics, 2018)