Português
Portugal is one of the European countries where the pressure of chronic non-communicable diseases (CNCDs) will be felt the most (Coelho et al, 2019). In Portugal, more than four in ten adults suffer from a chronic disease (OECD, 2021). In 2019, 41% of Portuguese aged 16 and over reported suffering from at least one chronic disease, a higher proportion than in the EU (36 %) (OECD, 2021).
The assessment of the experience of the person with chronic disease and the caregiver has a central relevance by the Institute for HealthCare Improvement analysis based on the "experience of care", one of the three proposed by the "triple goal" framework having underlying "better health, better care and lower costs" (Mira et al, 2016).
IEXPAC is based on the "Chronic Care Model" that assesses the user's experience and their continuous interaction with health professionals and services. It is necessary to generate results that consolidate this type of measurement, showing its association with other outcome indicators whose relevance and usefulness are widely needed to improve care and health gains, namely well-being. The perception of well-being reflects the cognitive and emotional reactions to life circumstances (Ponte & Ribeiro, 2016). People's perceptions of their lives as meaningful and purposeful may be a crucial psychological resource for maintaining their optimal well-being during a challenging period of illness (Mohiyeddini et al, 2020).
TEAM RESEARCH
Adelaide Belo: PAFIC; ULSLA; ACSS
Helena Carvalho, Iscte - Instituto Universitário de Lisboa
Inês Espírito Santo – PAFIC; CHULC, Iscte - Instituto Universitário de Lisboa
Liliana Gonçalves: ANCI
Monica Santos – PAFIC; ULSLA
| Research Centre | Research Group | Role in Project | Begin Date | End Date |
|---|---|---|---|---|
| CIES-Iscte | -- | Partner | 2023-03-01 | 2023-09-30 |
| Institution | Country | Role in Project | Begin Date | End Date |
|---|---|---|---|---|
| Portuguese Association for Integrated Care (PAFIC) | Portugal | Partner | 2023-03-01 | 2023-09-30 |
| Associação Nacional de Cuidadores Informais (ANCI) | Portugal | Partner | 2023-03-01 | 2023-09-30 |
| Name | Affiliation | Role in Project | Begin Date | End Date |
|---|---|---|---|---|
| Helena Carvalho | Professora Catedrática (DMPS); Integrated Researcher (CIES-Iscte); | Researcher | 2023-03-01 | 2023-09-30 |
| Maria Inês E. Santo | Associate Researcher (CIES-Iscte); | Researcher | 2023-03-01 | 2023-09-30 |
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