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Riso, B. (2016). Good citizens: citizen’s participation in biomedical research biobanks. Third ISA Forum of Sociology "The Futures We Want: Global Sociology and the Struggles for a Better World".

B. A. Riso,  "Good citizens: citizen’s participation in biomedical research biobanks", in 3rd ISA Forum of Sociology "The Futures We Want: Global Sociology and the Struggles for a Better World", Vienna, 2016

@misc{riso2016_1714490744593,
	author = "Riso, B.",
	title = "Good citizens: citizen’s participation in biomedical research biobanks",
	year = "2016",
	howpublished = "Outro",
	url = "http://www.isa-sociology.org/forum-2016/"
}

TY  - CPAPER
TI  - Good citizens: citizen’s participation in biomedical research biobanks
T2  - Third ISA Forum of Sociology "The Futures We Want: Global Sociology and the Struggles for a Better World"
AU  - Riso, B.
PY  - 2016
CY  - Vienna
UR  - http://www.isa-sociology.org/forum-2016/
AB  - Biobanks have been developing more intensively after the Human Genome Project. In some countries, national biobanks were established over an idea of nation. Massive citizen’s recruitment took place, claiming citizenship duties to help the national biomedical research, thus contributing to (re)construct a particular idea of nationhood. As good citizens, individuals “should” give their samples for the benefit of the whole nation. Besides, individuals willing to give samples often referred the altruism, and the feeling of participating in a better future for their children and for the humanity as personal reasons to motivate the donation.
In other cases, recruiting and collecting samples for biomedical research purposes is subtler. For ages, many doctors have established their own sample collections trough their medical practice. During medical appointments, patients were invited to give samples - which is still a current practice. According to the Portuguese law, which enforces medical power, requesting samples for storage could only be made by medical doctors. Although the medical profession has a central position, I argue the varying symbolic value of each sample shapes the doctor-donor relationship – the way medical authority is performed is different when the individual has interesting samples to provide.
Even trough digital technologies, citizens could be participants and influent activists defining the path of research. However, when there is no way to participate in research decision-making, joining patients association could be seen as an effort to influence research by the available means. 
This research aims to discuss how health and illness are being conceptualised in a changing health context still marked by the powerful medical authority of recent past. An ethnographic study is being conducted in a Portuguese biobank, in order to enlighten how these relationships between health professionals and donors are creating and redefining new modes of citizen participation. 
ER  -