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A publicação pode ser exportada nos seguintes formatos: referência da APA (American Psychological Association), referência do IEEE (Institute of Electrical and Electronics Engineers), BibTeX e RIS.

Exportar Referência (APA)
Freitas, C., Silva, S., Maia, T. & Amorim, M. (2019). Public participation in health data governance: A scoping review. In Yves Charpak, Denis Zmirou-Navier, Dineke Zeegers Paget (Ed.), European Journal of Public Health. (pp. 238-239). Marseille: Oxford University Press (OUP).
Exportar Referência (IEEE)
C. S. Freitas et al.,  "Public participation in health data governance: A scoping review", in European Journal of Public Health, Yves Charpak, Denis Zmirou-Navier, Dineke Zeegers Paget, Ed., Marseille, Oxford University Press (OUP), 2019, vol. 29, pp. 238-239
Exportar BibTeX
@inproceedings{freitas2019_1765914507830,
	author = "Freitas, C. and Silva, S. and Maia, T. and Amorim, M.",
	title = "Public participation in health data governance: A scoping review",
	booktitle = "European Journal of Public Health",
	year = "2019",
	editor = "Yves Charpak, Denis Zmirou-Navier, Dineke Zeegers Paget",
	volume = "29",
	number = "",
	series = "",
	doi = "10.1093/eurpub/ckz185.647",
	pages = "238-239",
	publisher = "Oxford University Press (OUP)",
	address = "Marseille",
	organization = "",
	url = "https://academic.oup.com/eurpub/article/29/Supplement_4/ckz185.647/5624891"
}
Exportar RIS
TY  - CPAPER
TI  - Public participation in health data governance: A scoping review
T2  - European Journal of Public Health
VL  - 29
AU  - Freitas, C.
AU  - Silva, S.
AU  - Maia, T.
AU  - Amorim, M.
PY  - 2019
SP  - 238-239
SN  - 1101-1262
DO  - 10.1093/eurpub/ckz185.647
CY  - Marseille
UR  - https://academic.oup.com/eurpub/article/29/Supplement_4/ckz185.647/5624891
AB  - The sheer growth of the health data shared and traded globally holds great promise and menace to public health. Big health data can foster scientific advancements with potential to heal millions across the globe. However, inerasable digital footprints left by the use of apps and digital services challenge people’s privacy and autonomy in (un)foreseeable ways that may cause them to stop sharing data. While many argue that public participation in data governance is a right, others view it as a means to increase data subjects’ recruitment and amass large quantities of data. Little systematic knowledge exists, however, about the arguments for and impact of public participation on health data policy and management.
ER  -