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Freitas, C. de., Silva, S., Teles, E. L., Maia, T. & Amorim, M. (2020). Participation in data generation and information sharing: Are patients and carers willing to engage?. In European Journal of Public Health. (pp. v138).: Oxford University Press (OUP).
C. S. Freitas et al., "Participation in data generation and information sharing: Are patients and carers willing to engage?", in European Journal of Public Health, Oxford University Press (OUP), 2020, vol. 30, Suppl.5, pp. v138
@inproceedings{freitas2020_1732227499476, author = "Freitas, C. de. and Silva, S. and Teles, E. L. and Maia, T. and Amorim, M.", title = "Participation in data generation and information sharing: Are patients and carers willing to engage?", booktitle = "European Journal of Public Health", year = "2020", editor = "", volume = "30, Suppl.5", number = "", series = "", doi = "10.1093/eurpub/ckaa165.370", pages = "v138", publisher = "Oxford University Press (OUP)", address = "", organization = "World Federation of Public Health Associations (WFPHA), Italian Society of Hygiene, Preventive Medicine and Public Health (SItI), European Public Health Association (EUPHA)", url = "https://academic.oup.com/eurpub" }
TY - CPAPER TI - Participation in data generation and information sharing: Are patients and carers willing to engage? T2 - European Journal of Public Health VL - 30, Suppl.5 AU - Freitas, C. de. AU - Silva, S. AU - Teles, E. L. AU - Maia, T. AU - Amorim, M. PY - 2020 SP - v138 SN - 1101-1262 DO - 10.1093/eurpub/ckaa165.370 UR - https://academic.oup.com/eurpub AB - Health systems are moving towards a personalisation of care. Personalised care relies on data-intensive research, which depends on active participation by citizens in data generation and information sharing. Collecting and sharing one’s data for research can deliver several benefits. However, it also comes at a cost in time and effort that may burden different population subsets to varying degrees. This study aimed to assess patients’ and carers’ willingness to generate and share health data, and its associated factors, to inform the design of inclusive engagement strategies. ER -