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Freitas, C. de., Amorim, M., Teles, E. L., Maia, T., Machado, H. & Silva, S. (2020). Public preferences for involvement in the governance of health data. In European Journal of Public Health. (pp. v294).: Oxford University Press (OUP).
C. S. Freitas et al., "Public preferences for involvement in the governance of health data", in European Journal of Public Health, Oxford University Press (OUP), 2020, vol. 30, Suppl.5, pp. v294
@inproceedings{freitas2020_1734850469313, author = "Freitas, C. de. and Amorim, M. and Teles, E. L. and Maia, T. and Machado, H. and Silva, S.", title = "Public preferences for involvement in the governance of health data", booktitle = "European Journal of Public Health", year = "2020", editor = "", volume = "30, Suppl.5", number = "", series = "", doi = "10.1093/eurpub/ckaa165.801", pages = "v294", publisher = "Oxford University Press (OUP)", address = "", organization = "World Federation of Public Health Associations (WFPHA), Italian Society of Hygiene, Preventive Medicine and Public Health (SItI), European Public Health Association (EUPHA)", url = "https://academic.oup.com/eurpub" }
TY - CPAPER TI - Public preferences for involvement in the governance of health data T2 - European Journal of Public Health VL - 30, Suppl.5 AU - Freitas, C. de. AU - Amorim, M. AU - Teles, E. L. AU - Maia, T. AU - Machado, H. AU - Silva, S. PY - 2020 SP - v294 SN - 1101-1262 DO - 10.1093/eurpub/ckaa165.801 UR - https://academic.oup.com/eurpub AB - Public involvement in the governance of epidemiological and public health studies can foster needs-driven research, enhance participants’ recruitment, reduce attrition and improve the quality of and ethics in research and surveillance. However, it can also reinforce health inequalities if it fails to ensure public representation across socioeconomic gradients. This study aimed to assess patients’ and carers’ preferences for involvement in collective health data governance, and its associated factors, to strengthen the evidence base for policy development. ER -