Publication in conference proceedings
Public preferences for involvement in the governance of health data
Claudia de Freitas (Freitas, C.); Mariana Amorim (Amorim, M.); Elisa Leão Teles (Teles, E.); Tiago Maia (Maia, T.); Helena Machado (Machado, H.); Susana Silva (Silva, S.);
European Journal of Public Health
Year (definitive publication)
2020
Language
English
Country
United Kingdom
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(Last checked: 2025-12-15 12:39)

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Abstract
Public involvement in the governance of epidemiological and public health studies can foster needs-driven research, enhance participants' recruitment, reduce attrition and improve the quality of and ethics in research and surveillance. However, it can also reinforce health inequalities if it fails to ensure public representation across socioeconomic gradients. This study aimed to assess patients' and carers' preferences for involvement in collective health data governance, and its associated factors, to strengthen the evidence base for policy development.
Acknowledgements
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Keywords
Publication Identifiers
ci-pub-112483
http://hdl.handle.net/10071/35745
Other Publication Details
2020
Oxford University Press
Web of Science©;
1101-1262 (print)
1464-360X (online)
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30
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Yes
16th WCongress on Public Health 2020: Public health for the future of humanity: Analysis, advocacy and action
Conference
International
2020
Short Paper
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