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Ciência-IUL
Publications
Publication Detailed Description
Participation in data generation and information sharing: Are patients and carers willing to engage?
European Journal of Public Health
Year (definitive publication)
2020
Language
English
Country
United Kingdom
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Abstract
Health systems are moving towards a personalisation of care. Personalised care relies on data-intensive research, which depends on active participation by citizens in data generation and information sharing. Collecting and sharing one’s data for research can deliver several benefits. However, it also comes at a cost in time and effort that may burden different population subsets to varying degrees. This study aimed to assess patients’ and carers’ willingness to generate and share health data, and its associated factors, to inform the design of inclusive engagement strategies.
Acknowledgements
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Keywords
Fields of Science and Technology Classification
- Health Sciences - Medical and Health Sciences
Funding Records
| Funding Reference | Funding Entity |
|---|---|
| UIDB/03126/2020 | Fundação para a Ciência e a Tecnologia |
