Scientific journal paper Q1
Ethical considerations for Forensic Genetic Frequency databases: First report conception and development
M. E. D’Amato (D’Amato, M.E.); Yan Joly (Joly, Y.); V. Lynch (Lynch, V.); Helena Machado (Machado, H.); Nathan Scudder (Scudder, N.); M. Zieger (Zieger, M);
Journal Title
Forensic Science International: Genetics
Year (definitive publication)
2024
Language
English
Country
United States of America
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Abstract
The Forensic Databases Advisory Board (FDAB), an independent board that assists the International Society for Forensic Genetics (ISFG), has presented a First Report on ethical aspects of the following Forensic Genetic Frequency Databases (FGFD): EMPOP, STRidER and YHRD. The FDAB designed an ethical framework to evaluate the content of these FGFD, and the factors to be considered for retention and acceptance of submissions. The FDAB framework proposes to categorize submissions according to the risk of having contravened the universal ethical principles outlined by international organizations, and the guidelines adopted by the ISFG. The report has been open to discussion by the scientific community since 2023. Herein we present the conception and development of the First Report along with a summary of its content, with consideration of the feedback received.
Acknowledgements
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Keywords
Forensic Genetic Frequency databases,Databases,Forensic,Vulnerable population,Consent,Ethics,Ethics review board,Legacy data,Forensic databases advisory board
  • Biological Sciences - Natural Sciences
  • Clinical Medicine - Medical and Health Sciences
  • Health Sciences - Medical and Health Sciences