Ciência-IUL
Publicações
Descrição Detalhada da Publicação
“Not storing the samples it’s certainly not a good service for patients”: Constructing the Biobank as a health place
Título Revista
Societies
Ano (publicação definitiva)
2022
Língua
Inglês
País
Suíça
Mais Informação
Web of Science®
Scopus
Google Scholar
Abstract/Resumo
Biobanks have been established from the beginning of the millennium as relevant infrastructures to support biomedical research. These repositories have also transformed the paradigm of collecting and storing samples and associated clinical data, moving these practices from the healthcare services and research laboratories to dedicated services. In Portugal, the establishment of biobanks is happening in the absence of a specific legal framework, turning it difficult to fully understand the scope of their action. This ethnographic research explored how establishing a biobank challenges the dynamics between healthcare and biomedical research. The ethnography intended to follow the path of biological samples from the hospital, where they were collected, to the biobank in a research institute, where they were stored. Findings suggest that although the nature of the biobank’s technical work seemed to inscribe it as a research-oriented setting, the biobank’s daily work was performed through symbolic action in the logic of care. Biobank staff constantly recalled the human nature of the samples, and they built complex illness narratives of each sample, promoting a connection with the absent donor. These practices were crucial to constructing the biobank as a health place, one that was designed to be life-saving in the near future.
Agradecimentos/Acknowledgements
--
Palavras-chave
Biobank,Health,Human biological samples,Biomedical research,Ethnography,Caring practices,Illness narratives,Portugal (Study context)
Classificação Fields of Science and Technology
- Sociologia - Ciências Sociais
Registos de financiamentos
Referência de financiamento | Entidade Financiadora |
---|---|
SFRH/BD/100779/2014 | Fundação para a Ciência e Tecnologia |
UIDB/03126/2020 | Fundação para a Ciência e a Tecnologia |
952377 | European Commission |
Contribuições para os Objetivos do Desenvolvimento Sustentável das Nações Unidas
Com o objetivo de aumentar a investigação direcionada para o cumprimento dos Objetivos do Desenvolvimento Sustentável para 2030 das Nações Unidas, é disponibilizada no Ciência-IUL a possibilidade de associação, quando aplicável, dos artigos científicos aos Objetivos do Desenvolvimento Sustentável. Estes são os Objetivos do Desenvolvimento Sustentável identificados pelo(s) autor(es) para esta publicação. Para uma informação detalhada dos Objetivos do Desenvolvimento Sustentável, clique aqui.