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Publication Detailed Description
“Not storing the samples it’s certainly not a good service for patients”: Constructing the Biobank as a health place
Journal Title
Societies
Year (definitive publication)
2022
Language
English
Country
Switzerland
More Information
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Abstract
Biobanks have been established from the beginning of the millennium as relevant infrastructures to support biomedical research. These repositories have also transformed the paradigm of collecting and storing samples and associated clinical data, moving these practices from the healthcare services and research laboratories to dedicated services. In Portugal, the establishment of biobanks is happening in the absence of a specific legal framework, turning it difficult to fully understand the scope of their action. This ethnographic research explored how establishing a biobank challenges the dynamics between healthcare and biomedical research. The ethnography intended to follow the path of biological samples from the hospital, where they were collected, to the biobank in a research institute, where they were stored. Findings suggest that although the nature of the biobank’s technical work seemed to inscribe it as a research-oriented setting, the biobank’s daily work was performed through symbolic action in the logic of care. Biobank staff constantly recalled the human nature of the samples, and they built complex illness narratives of each sample, promoting a connection with the absent donor. These practices were crucial to constructing the biobank as a health place, one that was designed to be life-saving in the near future.
Acknowledgements
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Keywords
Biobank,Health,Human biological samples,Biomedical research,Ethnography,Caring practices,Illness narratives,Portugal (Study context)
Fields of Science and Technology Classification
- Sociology - Social Sciences
Funding Records
Funding Reference | Funding Entity |
---|---|
SFRH/BD/100779/2014 | Fundação para a Ciência e Tecnologia |
UIDB/03126/2020 | Fundação para a Ciência e a Tecnologia |
952377 | European Commission |
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